Today is Maya’s first real therapy day, and it’s not easy. It’s hard to see how frustrated she gets, when she wants to play, but can’t, because of the restraint. Her right hand is just not capable of doing what is asked of her, which results in almost constant crying during therapy. This morning Sanj and I had to step out (otherwise she would only cling to us the whole time) but it was hard to hear her cry in the other room. What did she do to deserve this. Nothing! On the other hand, we have to keep telling ourselves that she is lucky to get this opportunity.The photo below shows how the therapists typically “shape” her movements by placing their hands on top of hers. All new movements patterns are reinforced by repeating them again, and again, and again...
Hang in there guys! You are the greatest parents your girls could ask for. We have enormous respect for the way you are handling this. It's not the easiest road you could travel and you're brave enough to take it. Love, Mark and Solveigh. p.s. I think Mats is infatuated with Maya. We thought he was saying mama, but now we clearly heard a 'Maya'! ;-)
ReplyDeleteHi Guys
ReplyDeleteWe are all thinking of you back in the UK.
It looks an amazing life changing experience for you all.
Look after each other and take care.
All our love Lee, Fiona, Ethan and Elizabeth
listen babes, you knew this was not going to be easy, you made the choice to give Maya the best possible treatments. you will come through this and so will she, better equipt to deal with her reluctance to use her right hand. you made the right choice, and even though we cant be there to help, remember we are are all really wishing that we could do something to ease the pain right now. be strong. the weeks will pass quickly and you will come home knowing that you did the best for Maya. after all, Tiago is a big boy and she is going to need both hands....... love you all.
ReplyDeleteShe is so so beautiful!!!
ReplyDeleteI wish I could help... she gets frustrated because she wants to do things and that is very important..
I know it must be painful to listen to her cry, but as with many other things in a baby's life, she will not remember the crying, but will live with the benefits from therapy.
All my love (and Tiago's, do not forget she is promised in marriage already...)
Maria